Published: Apr 27, 2014 10:37 AM EDT

LEE COUNTY, Fla.- Gavin Lawrey is a little boy with a big spirit, fighting Mitochondrial disease. We first introduced you to him and his family with our partners at the News-Press last year.

One year after their story first hit the newspaper and the airwaves, Gavin's mom Brandi and big sister Makenzie joined us live in the studio to talk about how their lives have changed, and a special event coming up.

You can read the one year follow up on Gavin's story here: