Published: Nov 28, 2013 10:56 PM EST
Updated: Nov 29, 2013 10:19 AM EST

FORT MYERS, Fla.- A tough time on Thanksgiving for a Fort Myers man suffering from a rare disease.It continues to get worse and prevents him from doing things-a lot of us take for granted.

But now, his family says, the government is taking away his livelihood.

36-year old Jonathon Carmichael suffers from a rare disease called FOP, where extra bone continues to form over his muscle.

"He's in pain 24 hours a day," said his mother, Barbara.

"I already have to depend on them so much and now I am taking more away," said Jonathan.

Carmichael has collected disability Social Security since he was 18 and it's a little more than $700 a month.

It's cash that they say is crucial to survive.

But a letter they received from the Social Security Administration says that money will soon stop coming.

"They told me, well, you have been overpaid from 1995 to 1999, $14,000," said Barbara.

"I was told in 2000 that it was taken care of and I didn't have to worry about it," said Jonathan.

Now, more than 18 years later, Barbara says the government will hold Jonathan's checks until April of 2015.

"I could be out of this apartment, I don't know where I would be, I couldn't give the care needed," said Barbara.

It's care that cost them hundreds out of pocket. Barbara says she is going to appeal, but claims the government told her that may not work.

"I'm worried 24 hours a day about how I am going to pay things," she said.

WINK News called and e-mailed the Social Security Administration, but have not heard back from them.