Healthy kids

Published: Updated:

FORT MYERS, Fla.

Saturday, February 28, is Rare Disease Day.  Here to discuss this and more is Dr. Annette St. Pierre-MacKoul.
Rare Disease Day Facts:
Rare Disease affects < 200,000 Americans
Affects 30 million Americans
2/3 of those affected are children.
1/10 people are affected.
7000 Rare Diseases
80% caused by a genetic abnormality.
Only 5% =350 diseases have FDA approved treatments.
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Rare Disease Day:
Originated in 2008 by EURORDIS
NORD = National Organization for Rare Disorders
2008 – 18 countries / 2015 – 84 countries.
In 8 years, >230 meds have been approved by FDA.
450 ‘orphan drugs’ are in development.
Last day of February each year.
Raise awareness!
Donate for research!
For more info: http://www.rarediseaseday.org/

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